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Thursday, November 6, 2008

EEG is done

We went the hospital this morning...this time with no REAL problems getting there!! PRAISE THE LORD;0)
Sarah was the life of the office...walked right in waved at everyone!! and then found herself a nice a comfortable spot to play inside a little tykes house (if anyone wants to know what she wants for Christmas....I'm sure she'd love one of those!!This one had everything including a fake fire place with a porch on the side..kinda made me wish I was a kid again;0)! she was so funny this time!!
The fun and laughter stopped as soon as we went into the room with the bed!! she really was better then I had imagined she would be. yes she screamed and cried but it was just because she was strapped down...once she was all wired up we turned off the lights, I actually laid beside her for the testing and the tears turned into actual giggles...
I have to explain. When this appointment was scheduled they asked if Sarah had a bottle or something that comforted her when she was upset...she still takes a bottle once in a while so I brought it today with hopes that it would calm her the lights we off there was the hum of the machine and a little girl snug as a bug with her momma laying beside her, we were trying to get her to go to sleep, so I was holding her bottle for her because she couldn't use her arms..while I was holding her bottle, I was rubbing her cheek bone, this made her giggle, and when I’d stop, she'd say "more" it was the funniest thing!
one the way out she wanted to stop and give everyone behind the desk a kiss....
once the EEG was done we headed down stairs to the doctors appointment where the results were being sent...
The results showed ABSOLUTELY no seizure activities!!
So what's next?we start to wean the Phenobarbital and go back in 3 months to see just the doctor, by that time Sarah will be completely off the medicine.
So I am asking you to please keep Sarah in your prayers for safety and that there will be no seizures, and for us as her parents that we will be very tuned in to Sarah if by chance she does have seizure. We are praying that the seizures do not return, and that this is one more door that is closed behind her!!