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Wednesday, July 23, 2008

more then what they thought...

Sarah is definitely a little miracle girl! I know that all babies are miracles....but there are some that you sit and you think, they are here after they've been through all of that....











so many times i find myself just looking at pictures and watching Sarah as she has grown and think, what is God up to with her life.





Sarah began putting on the weight at around 3 months. We began to notice that she wasn't doing what her sister was. Developmentally Sarah as falling behind. And i also know that each child is different and that it's not fare to compare, but come on, parents do and somehow that makes it okay, right?



WE noticed that Sarah wasn't eating anymore then her sister but yet her weight was becoming an issue, and with the weight issue came the "problems" Sarah wasn't able to support her own weight at all, she wasn't even trying.




She was in and out of the hospital for breathing problems, (if you want to know more about this then read some older post..)





Sarah had made it out of surgery and the Doctor explained that when he got to the tumor there was calcium all around it, meaning that the tumor had to of been there for a while, and seeing that she was only a year old, she may have had it there her entire life.



At the time of surgery Sarah weighed 30 pounds...go ahead and say it, it's okay..."wow that 's a big girl!" she weighed as much as her 2 .5 year old brother. no wonder she couldn't move around, right?



the awesome news is that it's going on 9 months and Sarah still weighs 30 pounds, she hasn't gained a pound and it's not a concern!!! and she has not been admitted back into the hospital for "breathing problems" God has been so good to us! We miss the nurses at the hospital, in a way but it's a good thing right?



okay now onto the a more serious note.



the last post i mentioned that the tumor was being sent away....well it only took a few days and it was determined that is was a low grade cancer tumor. At this point a parent must make a decision, focus on the good or the bad. WE as parents choose to rejoice...




I rejoiced that God allowed us to find this nasty tumor before it went on any longer, I praised the Lord that He kept me back from going with my daughter in the ambulance to the hospital when this all started. I praised the Lord that DR. A's eyes were still open to my daughter. Although He and the nurses had seen Sarah 3 or 4 days per months they didn't treat her like she was a regular patient. they were attentive to her.



I praised the Lord the He opened the door for the Doctor to have an opening to perform the surgery a day after we found out Sarah had a brain tumor, this never happens unless it's a God thing! God was in it from the very beginning! He saw Sarah through it and is still seeing her through it.



Because it was a low grade cancer tumor Sarah has to have MRI's every few months to make sure the tumor is not growing back. They do this to make sure no radiation or chemo is needed.



the song that goes through my mind at this point of the testimony is, " His report says VICTORY..whose report will you believe, His report says VICTORY!!!"



Sarah is walking in the Grace of God. Her name is so fitting and ordained by God..."Sarah Grace" here are some picture of Sarah...then and nowwe had just got her stitches out and were finally able to celebrate the girls 1st birthday (below)...Sarah had to be isolated until the stitches were removed.....
we found our right before this picture (below), that Sarah's MRI came back with Great news! no tumor was growing back!










We are coming up onto our 2nd MRI in a few weeks.




and this is Sarah now:




you can't even see the scar!

Tuesday, July 15, 2008

surgery

I the night before Sarah's Surgery i was very busy emailing and calling people. letting them know that Sarah was going to need surgery to remove the brain tumor. Jacob stayed with me in the hospital. and we were preparing ourselves for the next day.

Our other 3 three children were taken to Grandma and Grandpa's, so that our attention could be solely on Sarah. She was such a trooper.





This is Sarah and Daddy the morning of the surgeryand this is My parents with Sarah. They wanted to be with us to help us through the day and to just be our support. this pictures is just a few minutes before we headed downstairs the the OR.


WE said a prayer for the Doctor and for Sarah and then we were off.

Those last few minutes we had with our daughter went way to fast!

The Doctor came out and showed us exactly where the incision would be and how long it would take. Sarah was then placed in the nurses arms where we watched as Sarah looked at the nurse and then looked at us, instead of crying she let out this squeal! she mad eye contact with the nurse and never looked back at us again.

God was so real at that moment. We asked that he'd give Sarah peace as they carried her off and that peace was so evident! it would have been heart wrenching if Sarah was screaming as they took her away, I didn't want to see my Daughter like that before the surgery.

We knew that God was in control, but we had no idea what His plans were. But we placed Sarah in His Arms and humbly asked that he would simply prepare us for what the "plan" was.

God was working, we had the peace that surpasses all understanding. She is not ours, she is a gift from God. We get the privilege to "rent" our sons and daughters.

we were told that the operation would take 4-5 hours. and that we would be called when she was done.

we had decided to go someplace. I didn't not want to sit and wait, so we did the next best thing...we went shopping at Walmart!!

Those 4.5 hours went so slow! and then the phone rang.

Sarah had made it through the surgery and was headed to the PICU.
The doctors told us what we were walking in on, more so that we wouldn't freak out! Sarah was sleeping and was resting comfortably. she was placed on Morphine and so it was making her sleepy. she had 25 stitched, and her eye was pretty swollen. she could not open it.
As I walked into the room, i looked at her and i saw nothing more then a miracle baby that was so beautiful!! She is a big/little girl with an even bigger plan from God on her life!!.

She was fighting the bandage on her head and the nurses decided to tie her arms down, which just made Sarah more mad! she was able to get out of everything they tried. finally i spoke up and said, just take it off her head, she will leave it alone. when they finally listen to my advice, Sarah did exactly what i said, she left her head alone!
The next 24 hours would be crucial. she needed to eat and make eye contact.
At first we couldn't get her to drink anything and their was a concern that she would need a blood transfusion. I got on the phone and asked people to believe with us that this wouldn't need to happen. with in 4 hours of asking for prayer Sarah showed signs of getting better.
She was moved to a normal room.
the plan was to begin weaning her from the morphine and the first day she could go with only Tylenol as needed, they would discharge her with in 48 hours.
the very next day she was off of it, but needed Tylenol every 4 hours. so we were just playing a waiting game..meanwhile Sarah become more and more like herself...



video

this was Sarah a couple of days after her surgery!


the floor actually put up the Christmas tree and had the children in each room call Santa!The lady holding Sarah by the tree quickly become both mommy and Sarah's favorite!



She was another one of our favorites!





This was the team...The surgeon on the left was the one who was in charge!! Sarah was doing wonderful until this group of white coats walked in!! she was not a fan of them!!!



they doctors and nurses where all amazed at how well Sarah was doing! and how quickly she got off of the Morphine! It was truly a testimony of How God uses doctors sometimes! I truly believe that God can do all things, but at times He chooses to use Doctors. Dr T did not heal my daughter, God used him, used his hands to heal my daughter.



We had to now wait for the biopsy to come back. but we were just rejoicing that God allowed us to have our daughter a little longer! She is a fighter and i tell everyone, God has a huge plan for this little girl!

Sunday, July 6, 2008

The heartbeat of JESUS!

On November 21, 2007 (which was the girls first birthday) my husband took Sarah along with her three siblings out for the morning so that I could get some sleep after working all night. It was going well. so we thought...

When they returned, Jacob mentioned to me that Sarah was gagging a lot. I seriously thought had something stuck in her throat or on the roof of her mouth. they were home about 15 minutes and my motherly instincts kicked in, or maybe it was God giving me wisdom...you can be the judge.

I was not able to help Sarah get whatever it was causing her to gag, out. I tried everything but nothing was working. Sarah was breathing okay, she was just not herself.

i decided that she needed to get to the closest ER. Her doctor's office was closed and so i did the next thing i knew...rushed her to the ER. I walked in and went to the desk and said, "she's having problems breathing." they rushed us back and gave her Oxygen right away. they had a pulse-ox on her and as long as the oxygen was on her she was okay, but as soon as it was taken away, it dropped to about 75. They couldn't let her go home because if you know anything about our oxygen level it needs to be in the upper 90's.

Sarah was definitely not herself, she wasn't fighting the mask, she was just sitting in my lap, with her head pressed up against my chest. not fighting anything or anyone.

the decision was made to send her to the children's hospital...yep Sarah saw need to see Dr. A and her favorite nurses. one more time. the problem was, i had 3 other children at home and a husband who needed to go back to work. we don't live near any family and so i was stuck. I had no other choice but to kiss Sarah Good bye and meet up with her in the Hospital. This was all part of God's plan...

God was holding me back,I felt in my heart, although it was difficult, I had to let her go by herself. "You give and you take away, but my heart will choose to say, bless it be the Lord..."

I will be honest, I cried when the ambulance drove off.

it was now about 4:30, I had to go home and try to call my boss to let her know most likely i would not be coming into work that night, We had to try and get someone to come over so that i could be free to go tp teh hospital

....Around 6:00 I was still at home trying to tie the knots, making sure everyone was okay for me to leave, and then the phone rang.

this is what i heard on the other end...

The Doctor was on the other end, "mom so whats been going on with Sarah?"

me: she was gagging and staring today, just not herself, and at the ER she couldn't keep her oxygen up past 75%

Doctor: he wanted to run some test on Sarah, because she just wasn't herself. he asked for permission

Me: yes please do what ever you need to, just remember her veins are hard to get to,So i request the best nurse that has worked on children, no one else.

Doctor: "when will you be coming here?"

ME: ASAP

we say good bye. after he encourages me that she's okay.

i run upstairs to back my bag, and when i come downstairs the phone was ringing.

i answered it again, (By this time Jacob is walking in the house).


It was the doctor again: "mom, i don't want to get you worried, your daughter is doing fine okay? but when I got off the phone with you just a few minutes ago, I walked into Sarah's room and she was twitching on her right side. I ordered a C.A.T scan right away. and we are waiting for the results. i will call you back when i get the results. Please don't go anywhere until you hear from me again. okay.


Me: okay, but she is okay right, she's breathing and all?

Doctor: yes she's moving around, she breathing, shes doing okay.

Me: okay please call me back as soon as you hear something.

WE say good-bye

This was when i completely lost it! I had to go back in the house and tell my husband what the doctor just told me, I couldn't even get the words out, he prayed and i composed myself enough to tell him, "Sarah is okay but she was twitching on her Right side,I have to call Pastor and get people praying for Sarah. So I called my Pastor, didn't get an answer, so I called my one neighbor who is like family told her and asked her to please pray for Sarah, Called Pastor again and this time i got through.

As soon as i heard his voice,I lost it again, I told him that they did a C.A.T scan and they were waiting for the results, but that Sarah had been twitching...He began to pray and rebuked this attack, he prayed for peace, he prayed for wisdom and safety. As he prayed, I felt complete peace come over me, not peace that this world gives, but peace like I've never felt before, Jesus himself had given me peace that was so badly needed.

i told him i needed to make some more calls and that we'd call him when i found out more.

The doctor called us back and said, "Mom we are life flighting Sarah. I really don't like telling you this over the phone, but in this situation i will. (I wish i could some how put into words how much love you could hear in his voice,) your daughters scan showed bleeding on the left side of her brain. she is stable and we've ordered am MRI and EEG to see if what i saw, when i walked into her room, was a seizure..."

my world stopped...i can not explain to you the thoughts that were going through my mind...while he was still talking i softly said, "Jesus help me, help her" once again that peace came into me.

There was a battle going on, and Satan would not win, for fear is not from God.

The Doctor told us that she would be in PICU of the hospital, come as soon as you can, but don't worry, she is going to be okay.

My husband and i made more phone calls to the pastor and to family and then we were off to the hospital.

it was the longest 1 1/2 hour drive that i have ever taken. On the ride we prayed that God's will be done, We simply asked that God would prepare us for what ever his plan was. we played worship songs and prayed the entire time.

we got to the hospital and they took us go see Sarah, she was sleeping so we stayed for just a little bit and then they called us over to the computer to show us what they had seen.

Let me stop here, to explain something:

the moment i walked into Sarah rooms, God should me the following, (and for all of you who are reading this and thinking, I'm a "bad" mother for not going with my daughter on the ambulance, hopefully this will change your mind about me.) Remember how i said It was God keeping me back from going with her, well i realized that this was all part of God's plan, you see if I would have gone with Sarah on the ambulance, I would most likely of been holding Sarah when the doctor walked into her room, making the twitching less noticeable. that twitching is what raised the red flags that something else was going on. I praise the Lord that I wasn't there and that SArah was twitiching as the Dcotor walked into her room, and you will know why as you continue to read.

Now back to What was happening in the hospital:

they wanted to do an MRI but they said they needed to wait on it. Sarah would have to be sedated and because she had a little cold, (and was a big baby) it was too risky, she may not be able to come out of the sedation. but they were keeping a close watch on her and if her vital signs dropped then they would be forced to go ahead with it. they were also watching for more twitching.

She was on oxygen and fluids only through an IV , they had wires on her chest keeping track of her vital signs...it was heart wrenching to see my little girl like that.


We were now playing the waiting game, Sarah had to get better or clear up a little before they would do this MRI to see what was really going on. they were not 100% sure if it was "just" bleeding, they needed to find out. We did know from the EEG that she was having seizures. WE waited 3 days before they could do any further testing on her. they eventually did the MRI.

I was to the point of just needing to go home and spend time with my other children, take a shower and just get a different perspective or view, what ever you want to call it. I knew that Sarah as in the best place she could be. So I left her and went home just for the day. My plan was to go back up around 7:00 at night.

SO i decided i would sit down at the computer and just send emails to update people who were praying.

As i sat down at the computer i had this over whelming peace come upon me. and instantly i saw my husband and i holding Sarah while Jesus bent down and picked us up and brought us close to His chest. All we could hear was HIS heartbeat. now if you are a mom or a parent, you know that the mother's heartbeat calms a crying baby and gives the baby peace.

It was as though Jesus was picking us up to bring us close to him, so that we would hear his heartbeat. by now there were at least 100 or more people praying not only for Sarah but for us as parents, God was hearing their prayers and we were being blessed with showers of peace.

God didn't make us go through this on our own, He showed me that Jesus was carrying us through it, and as long as we listened to HIS heartbeat we would have peace....


I shared this "vision" with Jacob and a couple of others, they were speechless. what can you say after something like that? not much..

I headed back to the hospital, ready to take on what ever came our way. The next day Jacob was at the hospital to hear what the results were, He knew i shouldn't do it by myself so he made arrangmetns for babysitters and school for our one boy...he made sure everything was taken care of!
The doctor walked in and said, all the nice polite stuff and then just laid it our for us, he said, "your daughters MRI came back and I'm sorry to have to tell you this but she has a brain tumor. My world stopped again,I closed my eyes and that's when i saw arms surrounding us...it was up to me would i listen for the heartbeat? The doctor reached up and grabbed my hand and said, "It's going to be okay. You guys don't have to choose to operate on it now, we can wait, but i will tell you this and it never happens, but I have an opening tomorrow! "(now lets get real, how many of you know that this NEVER happens unless it's a God thing!) My husband looked at me and i looked at him, all i said was "heartbeat" and he knew, it was as though we already new and we didn't need to pray about the decision. God had showed us already! and people were already covering Sarah in Prayer! There was no time to put it off. ( now i don't suggest that any of you who may be reading this go and make HUGE decisions like this with out praying, but Jacob and i both knew with out doubt that God was in it and was leading us EVERY step of the way. We knew that we knew that we knew God was saying do it, don't wait.)

I will tell you , that i did not think once about the danger that my daughter was in, at that moment when we said, "yes go ahead and do the surgery". her life was on the line and this thought didn't even cross my mind, why? because all i was hearing was the heartbeat of Jesus, when we had Sarah and her sister dedicated, we had Given Sarah back to the Lord and we meant it, she was not ours to keep, God could do anything he wanted with her, we simply asked that he would prepare us for His plan with her life. And with out a doubt he had prepared us.

The rest of the day, we held Sarah as much as possible, we just loved on her as much as we possibly could. She made it pretty easy. she was the happiest baby on the floor i will end with this video for now taken the day before her surgery...
video

Wednesday, July 2, 2008

before i go further...

let me give you a chance to fall in love with Sarah Grace....Sarah on the Right (both in the above and below pix), those gray cords are wires for her apnea




isn't she just a beautiful baby?