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Wednesday, November 26, 2008

she's two!!!

This week has been kind of emotional for me. When Sarah turned one she was in the hospital being air lifted with what the doctors thought was bleeding on the brain. But with God's grace and mercy she is here with us to celebrate her 2nd birthday. (if you are new to this blog and want to read her complete story please start at the beginning of this blog. or start at the post dated July 6th and then go to the post on July 15th)

and celebrate we did!! here are a few pictures of her party and some other pictures of Sarah at home with her twin!!

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this one above..this blanket hold a lot of memories...it was the blanket that was given to Sarah when she came out of surgery!

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Tuesday, November 11, 2008

can i brag!!?

Is it okay if I brag about our little miracle girl!!?

she is shocking the pants off us! two days in a row now she is dry! tells us when she has to go potty and goes like there is no tomorrow!! she wakes up and first thing she does is walk over to the little potty!

these two girls go back and forth, right now Sarah is putting her older sister(by a minute;0)) to shame...with this potty training thing!!. don't get me wrong her sister goes all the time, but Sarah is more consistent with, lets see how should i say this....going #2!! I haven't changed a messy diaper with Sarah in DAYS!

I had wanted them both potty trained by two...well they still have 10 days!! and if they continue on the road they are on now...it will happen!!

PRAISE JESUS!! can we say altogether.."diaper days are coming to an end..."hey, i heard that, little voice saying, yep just in time to have another..... nope Jacob and I are not even thinking about #5 right now!! we are very content with our four little blessing!!

This morning Sarah PT came by...it had been almost a month since are schedules lined up and Mr. Matt couldn't believe how well Sarah is getting around!! it was music to this momma's ears!!
well that is all the bragging i will do this time..enjoy these recent pix of Sarah and her crazy, silly brother, Josiah...who is becoming VERY affectionate

Thursday, November 6, 2008

EEG is done

We went the hospital this morning...this time with no REAL problems getting there!! PRAISE THE LORD;0)
Sarah was the life of the office...walked right in waved at everyone!! and then found herself a nice a comfortable spot to play inside a little tykes house (if anyone wants to know what she wants for Christmas....I'm sure she'd love one of those!!This one had everything including a fake fire place with a porch on the side..kinda made me wish I was a kid again;0)! she was so funny this time!!
anyway
The fun and laughter stopped as soon as we went into the room with the bed!! she really was better then I had imagined she would be. yes she screamed and cried but it was just because she was strapped down...once she was all wired up we turned off the lights, I actually laid beside her for the testing and the tears turned into actual giggles...
I have to explain. When this appointment was scheduled they asked if Sarah had a bottle or something that comforted her when she was upset...she still takes a bottle once in a while so I brought it today with hopes that it would calm her down...so the lights we off there was the hum of the machine and a little girl snug as a bug with her momma laying beside her, we were trying to get her to go to sleep, so I was holding her bottle for her because she couldn't use her arms..while I was holding her bottle, I was rubbing her cheek bone, this made her giggle, and when I’d stop, she'd say "more" it was the funniest thing!
one the way out she wanted to stop and give everyone behind the desk a kiss....
once the EEG was done we headed down stairs to the doctors appointment where the results were being sent...
The results showed ABSOLUTELY no seizure activities!!
So what's next?we start to wean the Phenobarbital and go back in 3 months to see just the doctor, by that time Sarah will be completely off the medicine.
So I am asking you to please keep Sarah in your prayers for safety and that there will be no seizures, and for us as her parents that we will be very tuned in to Sarah if by chance she does have seizure. We are praying that the seizures do not return, and that this is one more door that is closed behind her!!

Tuesday, November 4, 2008

pictures of Sarah and her siblings!!


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this last one makes me laugh...Sarah was screaming the entire time while i was trying to take these pictures..and then a car drove by long enough to distract her (I took advantage of this distraction, putting my camera on auto and took about 15 pictures...)and the minute the car was out of her view...she started up again!!
we are off to the hospital on Thursday for her EEG. We will let you know if anythign changes and how it goes. thank you for your prayers.